# Northern Ireland Rare Disease Partnership

## Details

- **Company number:** [NI611153](https://find-and-update.company-information.service.gov.uk/company/NI611153)
- **Status:** Active
- **Type:** PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption)
- **Incorporated:** 13 Feb 2012
- **Registered office:** 2 WILLIAM STREET, NEWTOWNARDS, BT23 4AH
- **Nature of business:** [86900](/sic/86900) Other human health activities



## Officers

| Name | Role | Appointed | Resigned |
|---|---|---|---|
| FOX, Eva | director | 9 Oct 2025 |  |
| ROBINSON, Samuel | director | 1 Jan 2025 |  |
| MCLAUGHLIN, Fiona Marie | director | 1 Jan 2025 |  |
| COLLINS, Christine Rosemary | director | 1 Jan 2025 |  |
| MCKNIGHT, Amy Jayne, Professor | director | 1 Jan 2025 |  |
| CAMPBELL, Sandra Margaret | director | 1 Jan 2025 |  |
| CHAUDHURI, Nazia, Dr | director | 21 Feb 2023 |  |
| O'LOAN, Anne-Marie | director | 10 Jul 2022 |  |
| MCKENNA, Caoimhe, Dr | director | 10 Jun 2022 |  |
| MCEVOY, John | director | 10 Jul 2022 | 31 Aug 2025 |
| CALLAGHAN, Sarah Marie | director | 1 Mar 2022 | 20 Dec 2024 |
| EASTWOOD, Julie Noelle | director | 8 Jul 2024 | 22 Jul 2024 |
| DONNELLY, Conan Brian, Dr | director | 27 Sep 2021 | 1 Jun 2024 |
| WRIGHT, Jan | director | 10 Jul 2022 | 1 May 2024 |
| DUDDY-DUGUEZ, Stephanie Marie-Rose, Dr | director | 1 Mar 2019 | 1 May 2024 |
| PHILLIPS, Angela Lyn | director | 1 Jul 2021 | 24 May 2023 |
| BOULANGER, Vanessa | director | 10 Jul 2022 | 21 Feb 2023 |
| LONGMORE, Kerry, Dr | director | 13 Jan 2021 | 5 Oct 2022 |
| MCKNIGHT, Cindy Helen Merrilees | director | 1 Oct 2018 | 5 Oct 2022 |
| MCANENEY, Helen, Dr | director | 1 Oct 2018 | 5 Oct 2022 |
| MCLAUGHLIN, Fiona Marie | director | 13 Jan 2021 | 10 Jul 2022 |
| WALKER, Rhoda Jean | director | 21 Nov 2018 | 10 Jul 2022 |
| CALDWELL, James Arthur | secretary | 31 Mar 2017 | 10 Jul 2022 |
| CALDWELL, James Arthur | director | 10 Nov 2015 | 10 Jul 2022 |
| CALLAGHAN, Rosaline | director | 13 Jan 2021 | 25 Feb 2022 |
| DABIR, Tabib, Dr | director | 18 May 2016 | 25 Feb 2022 |
| POWER, Julie | director | 10 Nov 2015 | 25 Feb 2022 |
| DUDDY-DUGUEZ, William John, Dr | director | 1 Mar 2019 | 5 Mar 2021 |
| ROBINSON, Samuel | director | 1 Oct 2018 | 5 Mar 2021 |
| CASSIDY, Gillian | director | 27 Oct 2016 | 5 Mar 2021 |
| MCKNIGHT, Amy Jayne, Professor | director | 13 Feb 2013 | 3 Nov 2020 |
| MCLAUGHLIN, Fiona Marie | director | 19 Apr 2016 | 1 Mar 2019 |
| DUNCAN, Alexander Samuel | director | 10 Nov 2015 | 1 Mar 2019 |
| MCCULLOUGH, Nichola, Dr | director | 8 Feb 2017 | 1 Oct 2018 |
| BARNES, Aodhan | director | 27 Oct 2016 | 1 Oct 2018 |
| COLLINS, Christine Rosemary | director | 13 Feb 2012 | 1 Dec 2017 |
| MCKILLOP, Catherine Mary | director | 13 Feb 2012 | 1 Dec 2017 |
| BLANEY, Patricia | director | 27 Sep 2016 | 31 Mar 2017 |
| MURPHY, Frances Mary | director | 13 Feb 2012 | 31 Mar 2017 |
| ARBUTHNOT, Rosemary Catherine | director | 13 Feb 2012 | 31 Mar 2017 |
| MCKILLOP, Catherine Mary | secretary | 13 Feb 2012 | 31 Mar 2017 |
| CRAIG, Teresa | director | 10 Nov 2015 | 27 Sep 2016 |
| WILSON, Alison | director | 13 Sep 2013 | 16 May 2016 |
| FINEGAN, David Christopher | director | 13 Feb 2013 | 16 May 2016 |
| CUNNINGHAM, Mark | director | 13 Feb 2012 | 6 May 2016 |
| MCCULLOUGH, Carol | director | 13 Sep 2013 | 15 Apr 2016 |
| MCCLEAN, Helen Agnes | director | 13 Feb 2012 | 25 Jan 2016 |
| ALI, Farhana | director | 13 Feb 2013 | 30 Oct 2015 |
| STEWART, Fiona Jane, Dr | director | 13 Feb 2012 | 30 Oct 2015 |
| ROONEY, Lesley | director | 13 Feb 2012 | 30 Oct 2015 |
| MCLAUGHLIN, Fiona Marie | director | 13 Feb 2012 | 30 Oct 2015 |
| MCCANDLESS, Sarah Marie | director | 13 Feb 2013 | 27 Oct 2014 |
| DUNCAN, Alexander Samuel | director | 13 Feb 2012 | 27 Sep 2014 |
| NUTT, Stephen | director | 13 Feb 2012 | 11 Sep 2013 |



## Control

| Name | Nature of control | Notified | Ceased |
|---|---|---|---|
| Ms Anne-Marie O'Loan | significant-influence-or-control-as-firm | 10 Jul 2022 |  |
| Ms Rhoda Jean Walker | significant-influence-or-control, significant-influence-or-control-as-trust, significant-influence-or-control-as-firm | 1 Mar 2019 | 10 Jul 2022 |
| Ms Fiona Marie Mclaughlin | right-to-appoint-and-remove-directors | 6 Apr 2016 | 1 Mar 2019 |



## Accounts

| Year ended | Net assets | Cash | Employees |
|---|---|---|---|
| 31 Mar 2025 | - | - | 0 |
| 31 Mar 2024 | - | - | 4 |
| 31 Mar 2023 | - | - | 4 |
| 31 Mar 2022 | - | - | 2 |
| 31 Mar 2021 | - | - | 2 |
| 31 Mar 2020 | - | - | 2 |
| 31 Mar 2019 | - | - | - |
| 31 Mar 2018 | £26,676 | - | - |
| 31 Mar 2017 | £22,624 | - | - |
| 31 Mar 2016 | £8,615 | £11,338 | - |
| 31 Mar 2015 | £15,685 | £18,690 | - |





## Directors' other companies

- [CAMPBELL, Sandra Margaret](/person/5380096) - director at [Joseph Campbell & Company Limited](/company/NI622277)
- [MCKNIGHT, Amy Jayne, Professor](/person/5380099) - director at [The Renal Association](/company/02229663)



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